1/21/2024 0 Comments Real ms iconquer msQ: The diagnosis of multiple sclerosis seems to have changed your view of the world and your own opportunities. President & CEO, Accelerated Cure Project for MS Principal Investigator, MS Patient-Powered Research Network (iConquerMS™) ![]() IConquerMS™ may not be on Broadway this season, but we are definitely in the limelight to gain traction for our pioneering model of patient-driven research! Or, if you have plans to speak at local or national events, please let us know and we can share slides that might be useful, and alert others about what you’re doing. If you have ideas for additional conferences/events where we should appear, please let us know. As you’ll see, people with MS are at the heart of these presentations, sharing their experiences and insights. In this issue, we cover some of the recent highlighted events where iConquerMS™ has been a featured topic. Much more, behind the scenes – with hours of planning, organization, preparation and promotion. Just an hour or two at the podium looking at a sea of encouraging faces, and one is finished, right? That’s all it takes.īut, as with most worthwhile endeavors, there’s more to it. Like ice-skating, speaking engagements look easy. In the aggregate, we’ve touched and informed thousands of different people through these settings. And, of course, iConquerMS™ representatives attend the meetings of the Patient-Centered Outcomes Research Institute (PCORI), which has provided initial funding for our network, so that we can represent our initiative and help PCORI to define the research opportunities in MS that matter most to iConquerMS™ participants. ![]() So far this year, representatives of iConquerMS™ have appeared at TEDx, the conference that spotlights innovations that will change the world at BioIT World, where scientists confer on how to gain insights from data at the American Association of Neurology annual meeting, the largest professional society in neurology and at the National Quality Minority Forum’s Leadership Summit on Health Disparities, which brings together critical stakeholders to support the implementation of integrated solutions to the problem of minority-population health disparities and improving quality of care. Part of the outreach strategy for iConquerMS™ is therefore to be present at as many conferences as feasible, to describe the initiative and alert all the stakeholders with a reason to care. And not just ‘one subject’ of interest that we need to address. In fact, the world of MS research is a large and diverse ecosystem: people living with the MS researchers, both academic and commercial data scientists physicians nurses caregivers advocacy organizations media, and interested members of the public.Īs a result, there is no ‘one place’ where the story of iConquerMS™ should be heard.
0 Comments
Leave a Reply. |
AuthorWrite something about yourself. No need to be fancy, just an overview. ArchivesCategories |